Research Guides: Health Statistics Online: Finding Data

Data Management

DMP Tool
The Data Management Plan (DMP) tool helps researchers: create ready-to-use data management plans for specific funding agencies; meet requirements for data management plans; get step-by-step instructions and guidance for data management plan; learn about resources and services available at your institution to fulfill the data management requirements of their grants.
Data Management Guide
Advice from the University of California Digital Library on Data management. Managing your data before you begin your research and throughout the research life cycle is essential to ensure usability, preservation and access

HIV / AIDS Surveillance Data
The HIV/AIDS Surveillance Data Base is a compilation of information from widely scattered small-scale surveys on the AIDS pandemic and HIV seroprevalence (infection) in population groups in developing countries. On December 31, 2024, the site will be decommissioned and users are encouraged to start using the Census Bureau's Harvest Data page: https://www.census.gov/programs-surveys/international-programs/about/harvest.html
SEER Data
Cancer SEER research data files and SEER*Stat software are available to download through your Internet connection (SEER*Stat’s client-server mode) or via discs shipped directly to you.

Many large, federally funded studies offer their data sets for ancillary studies but you will need to write a proposal for use.

Farmingham Heart Study
A long term cardiovascular disease study where you can request for data for secondary analysis.
CATIE Study
The Clinical Antipsychotic Trials of Intervention Effectiveness project (CATIE) is a research project to evaluate the clinical effectiveness of atypical antipsychotics in the treatment of schizophrenia and Alzheimer's disease. Submit proposal for ancillary studies with CATIE data.

Here are some resources available through the federal government and non-profit associations to find data sets.

FaceBase
A resource for craniofacial researchers
Health and Medical Care Archive
The Health and Medical Care Archive (HMCA) is the data archive of the Robert Wood Johnson Foundation (RWJF), the largest philanthropy devoted exclusively to health and health care in the United States.
HealthData.gov
This federal government site is dedicated to making high value health data more accessible to entrepreneurs, researchers, and policy makers in the hopes of better health outcomes for all.
Health Data Sources
A comprehensive list of further data resources compiled by the NIH National Library of Medicine's "Finding and Using Health Statistics" tutorial.
Institute of Health Metrics and Evaluation Global Health Data Exchange
The GHDx is IHME's catalog of the world's health and demographic data. Use the GHDx to research population census data, surveys, registries, indicators and estimates, administrative health data, and financial data related to health
US Census Data
Demographic Data available from the use US Census and the American Community Survey
WHO Global Health Observatory Data Repository
The GHO data repository provides access to over 50 datasets on priority health topics.
World Bank Data
A data catalog is available for specific health indicators.

There are many subscription services which offer their data for analysis but you will need to become a paying member of their association.

American Health Care Association
A membership is needed for access to this health care utilization research data.
Gallup Worldview
Gallup WorldView synthesizes Gallup's global intelligence to help users understand the strengths and challenges of the world's countries and regions more thoroughly than ever before. Compare citizens' responses - region by region, nation by nation - to questions of vital importance to the world today, on topics such as economic conditions, government and business, healthcare and well-being, infrastructure and education